TRAJETÓRIAS EDUCACIONAIS NA DOENÇA DE STARGARDT: UM ESTUDO DE CASO MÚLTIPLO EM CONTEXTO FAMILIAR

Abstract

Stargardt disease (STGD1) is an inherited retinal condition associated with progressive central vision loss, with a significant impact on activities related to school learning. This study aimed to analyze the educational repercussions of STGD1 in the schooling process of three individuals from the same family unit. This is an interpretative multiple case study based on a retrospective analysis of educational trajectories. Data were organized from accounts of lived experiences throughout the educational pathway, including learning difficulties, adaptation strategies, use of assistive technologies, and barriers within the school context. Consistent patterns of difficulties related to reading and access to visual content were observed, with variations among cases regarding the onset of clinical manifestations and the adoption of educational support strategies. Early introduction of accessibility resources was associated with greater continuity in the educational process. Family support emerged as a relevant element in mediating educational demands. The educational repercussions of STGD1 are influenced by the interaction between clinical, educational, and contextual factors, highlighting the importance of early accessibility strategies and continuous educational support.